5 Tips for New Parkinson’s Disease Caregivers

Share this content

If your loved one was recently diagnosed with Parkinson’s disease, your world might feel like it’s full of unknowns — and that can make the future seem scary.

Right now, you might be focused on educating yourself about symptoms, treatments, and the progression of the disease. As the disease progresses, your role in your loved one’s care may also change.

Maybe you’ll find yourself keeping track of doctor’s appointments and medication schedules. You might also be providing assistance with activities of daily living or adapting the home to meet their needs and abilities.

Coping with change — not to mention watching someone close to you struggle with the symptoms of the disease — is challenging. Fortunately, there are many tips, resources, and supports for you as you help maintain the quality of life for your loved one — and for yourself.

So if you’re wondering how to take care of your mom or dad with Parkinson’s, here are five tips for new Parkinson’s caregivers.

1. Join a Support Group

Your loved one needs support — and so do you. Caregiver isolation is real. To prevent feeling like you’re cut off from the outside world, join a support group where you can talk openly and honestly about what you’re going through.

Although it might feel awkward at first, support groups help you meet people who are in a similar situation, vent frustrations, give and receive support, and exchange resource information and coping strategies.

To find a support group, search for Parkinson’s resources near you with the Parkinson’s Foundation ZIP code tool or call the Parkinson’s Foundation Helpline at 1-800-4PD-INFO. You can also ask your loved one’s doctor or call a local hospital for help finding one in your area.

2. Get Organized

It’s likely that you’ll accompany your loved one to doctor’s appointments, make phone calls to insurance companies, and watch for changes in your loved one’s symptoms, abilities, and mood.

It helps to be prepared by keeping all of their medical notes, insurance records, appointments, important contacts and documents, and medications list in a folder that you and other members of the caregiving team can easily access.

One of the most important things to do when it comes to getting your affairs in order is discussing your loved one’s wishes regarding a living will and durable power of attorney.

3. Support Your Loved One

As a new caregiver trying to navigate how to take care of your mom or dad with Parkinson’s, it’s easy to fall into the trap of “parenting your parent.” But this role reversal can create tension in your relationship. Your parent might struggle with feeling like they’ve lost control or even purpose in their life.

To avoid the negative effects of role reversal, don’t take on responsibilities that your parent is perfectly capable of doing. Instead, encourage their independence and try to give them the best possible chance to do certain tasks on their own before stepping in to assist out of frustration.

A few examples:

  • Talk to them, not about them, when attending doctor’s appointments or managing other relationships, such as a financial planner or bank.
  • Even though you may be responsible for writing the checks out, your parent may still want to review and “approve” paying the bills.
  • Offering to help your parent shower in the morning or evening, whichever they’d prefer, is a great way to allow them some autonomy as you step into a more hands-on role.

Be sure there is a clear understanding of what your parent does want help with and what they would prefer to continue to manage on their own.

4. Plan Ahead

Although Parkinson’s disease progresses differently for everyone, your loved one may eventually need more assistance than you or other loved ones can provide at home.

It’s important that you talk about the future so that you not only understand your loved one’s wants further down the road but also that they know how much you feel comfortable taking on as a family caregiver. Letting a health crisis set the stage for this type of conversation can leave you making important life decisions under pressure and emotional stress or, even worse, leave you guessing what your parent’s wishes are depending on the extent of the crisis.

Discuss options such as home care, assisted living, and memory care. An assisted living community that has a memory care community on the same campus can allow your loved one to age in place, getting the assistance, socialization, and compassionate care they need — and deserve — while also allowing you to have some peace of mind.

5. Take Care of Yourself

Whatever you do, don’t put your life on hold. There’s no way you can safely take care of your loved one if you’re not physically and emotionally well.

So make sure you take time off or at least make time for activities that you enjoy. Ask other family members and friends to help out or look into hiring professional care.

And don’t feel guilty about it, or at least try not to. Remember, the less stressed you are, the better able you’ll be to provide the best care for your loved one.

Becoming a family caregiver for your loved one is a big undertaking. For more tips and resources to help guide you through this process, download our Becoming a Family Caregiver eBook.

{{cta(‘e65b0ccf-70ad-48fb-9b5a-0ac932848a55′,’justifycenter’)}}

  • Browse by Topics

  • Recent Posts

  • Have More Questions?

    Deciding to help a loved one transition to a senior living option is not an easy decision. We can help you get the clarity, answers, and support needed to lessen your worries and take the next steps.

    Click the button below to let us know how we can help you further.

  • Instant Access to Free Guide


    Have you decided that assisted living is the best option for your elderly parent, and now are feeling overwhelmed on how to begin your search for the right community?

    This guide will go over what you need to know before you make a decision.


    NOTE: Your privacy is important to us. We’ll never share your details nor spam your inbox.

    Instant Access to Free Guide


    Are you considering assisted living for yourself or a loved one but are hesitant about the cost? Assisted living costs, services and amenities vary greatly among the last and most expensive communities, and costs are higher in some states than others.

    This guide will answer questions you may have about the costs of assisted living and recommend resources to help you pay for it.


    NOTE: Your privacy is important to us. We’ll never share your details nor spam your inbox.

    Instant Access to Free Guide


    Talking to your aging parent about moving to an assisted living community isn’t easy.

    Often, many adult children avoid bringing it up because it can be a sensitive topic.

    This guide will provide you with helpful tips and insight on how to have a productive conversation with your parent and siblings regarding your parent’s future.


    NOTE: Your privacy is important to us. We’ll never share your details nor spam your inbox.

    Instant Access to Free Guide


    Difficult behaviors in elderly adults are very common. They may be an expression of frustration your loved one feels or a symptom of early stages of dementia or Alzheimer’s.

    This guide will provide you with skills and knowledge on how to handle difficult behaviors your aging parent may be experiencing.


    NOTE: Your privacy is important to us. We’ll never share your details nor spam your inbox.

    Instant Access to Free Guide


    Becoming a family caregiver can be a rewarding experience. It also has its challenges.

    There are many questions to answer before making the decision to take care of a loved one.

    This guide will provide answers to questions you may have on this topic.


    NOTE: Your privacy is important to us. We’ll never share your details nor spam your inbox.

    Instant Access to Free Guide


    Is your parent or loved one depressed, or just in a bad mood?

    What does medication and illness have to do with depression?

    How can you help? In this guide, you will be provided with answers to the difficult questions you may have about depression.


    NOTE: Your privacy is important to us. We’ll never share your details nor spam your inbox.

    Instant Access to Free Guide


    Has your aging parent recently lost interest in activities they used to enjoy? Have you noticed a change in their mood and behavior?

    This guide will provide you with resources and tools on how to identify depression, what are the common causes of depression, and how to promote mental health in your aging loved one.


    NOTE: Your privacy is important to us. We’ll never share your details nor spam your inbox.

    Instant Access to Free Guide


    Does your loved one need more support than what they are getting? Would they benefit from some assistance with daily activities?

    In this guide, you’ll find answers to the most common questions asked about assisted living.


    NOTE: Your privacy is important to us. We’ll never share your details nor spam your inbox.

    Instant Access to Free Guide


    Where do you start searching for assisted living or memory care communities?

    What qualities in a community should you look for? How do you know you made the right decision?


    NOTE: Your privacy is important to us. We’ll never share your details nor spam your inbox.

    Instant Access to Free Guide


    Has your dad stopped getting together for lunches or outings with friends or visits with neighbors? Have you stopped enjoying time with your parents because you’re a caregiver?

    Choosing an assisted living community is a big decision. Learn how to find the right one for you and your loved one.


    NOTE: Your privacy is important to us. We’ll never share your details nor spam your inbox.

    Instant Access to Free Guide


    No one ever plans to be sick or disabled, and disasters, man-made or natural, can happen at any time, anywhere.

    Yet older adults are among the most vulnerable during a crisis. That’s why it’s critical that seniors, and those who care for them, prepare for emergencies.


    NOTE: Your privacy is important to us. We’ll never share your details nor spam your inbox.

    Instant Access to Free Guide


    Moving to assisted living is a life-changing event.

    This guide provides tips and ideas on downsizing, what to pack and how to make the transition smooth for your senior parent.


    NOTE: Your privacy is important to us. We’ll never share your details nor spam your inbox.

    Instant Access to Free Guide


    In this eBook, you’ll learn how to talk with family and friends about caregiving challenges, how to deal with a parent who is resistant to help, how to get more caregiving help from your siblings, and how to keep your job while caregiving.


    NOTE: Your privacy is important to us. We’ll never share your details nor spam your inbox.

    Instant Access to Free Guide


    Have you had to cut back your hours at work to care for your mom? Are you worried about administering medications or injections?

    Have you stopped getting together with friends, either because you don’t have the time or you’re too exhausted? Are you becoming the invisible second patient?


    NOTE: Your privacy is important to us. We’ll never share your details nor spam your inbox.

    Instant Access to Free Guide


    A Guide to the Most Common Family Caregiver Challenges Associated with Caring for an Aging Parent.

    You’ll learn about the true costs of being a family caregiver, common family conflicts that can occur when caring for parents, and some of the unexpected challenges of caregiving.


    NOTE: Your privacy is important to us. We’ll never share your details nor spam your inbox.

    Instant Access to Free Guide


    In this guide, you’ll learn about the difference between Alzheimer’s and dementia, including the early symptoms of dementia; the seven stages of dementia and the symptoms that typically accompany each one; and the signs it’s time to start exploring your memory care options.


    NOTE: Your privacy is important to us. We’ll never share your details nor spam your inbox.

    Instant Access to Free Guide


    In this guide, you’ll learn about the difference between assisted living and memory care, how health care professionals are trained in dementia care, common features of a memory care community, and questions you should ask when exploring your memory care options.


    NOTE: Your privacy is important to us. We’ll never share your details nor spam your inbox.

    Instant Access to Free Guide


    Navigating adult sibling relationships can be a challenge, but coming together for the sake of your parent is important.

    In this guide, you’ll learn about common sibling conflicts that arise when caring for parents, strategies for getting siblings on board, and where to turn to for help.


    NOTE: Your privacy is important to us. We’ll never share your details nor spam your inbox.

    Instant Access to Free Guide


    Assisted living can be a touchy subject. No matter how you approach it, your parent is likely to have objections to something.

    As you help them transition to a new stage of life, it helps to be prepared with answers to their questions and concerns.


    NOTE: Your privacy is important to us. We’ll never share your details nor spam your inbox.

    Instant Access to Free Guide


    This checklist will help to make sure you are getting the most out of your visit to The Arbors.

    The list details what important questions to ask during your visit so you are able to make an enlightened choice and find the best assisted living community for your needs.


    NOTE: Your privacy is important to us. We’ll never share your details nor spam your inbox.

    Instant Access to Free Guide


    If you’re unsure what Assisted Living looks like in real life, whether there is a difference with nursing homes or a desire to see how community life unfolds, then this guide is exactly what you need.

    A guide to discover the Care Team and a Typical Day in Assisted Living.


    NOTE: Your privacy is important to us. We’ll never share your details nor spam your inbox.

    Instant Access to Free Guide


    Have you decided that assisted living is the best option for your elderly parent, and now are feeling overwhelmed on how to begin your search for the right community?

    This guide will go over what you need to know before you make a decision.


    NOTE: Your privacy is important to us. We’ll never share your details nor spam your inbox.

    Instant Access to Free Guide


    Are you considering assisted living for yourself or a loved one but are hesitant about the cost? Assisted living costs, services and amenities vary greatly among the last and most expensive communities, and costs are higher in some states than others.

    This guide will answer questions you may have about the costs of assisted living and recommend resources to help you pay for it.


    NOTE: Your privacy is important to us. We’ll never share your details nor spam your inbox.

    Instant Access to Free Guide


    Talking to your aging parent about moving to an assisted living community isn’t easy.

    Often, many adult children avoid bringing it up because it can be a sensitive topic.

    This guide will provide you with helpful tips and insight on how to have a productive conversation with your parent and siblings regarding your parent’s future.


    NOTE: Your privacy is important to us. We’ll never share your details nor spam your inbox.

    Instant Access to Free Guide


    Difficult behaviors in elderly adults are very common. They may be an expression of frustration your loved one feels or a symptom of early stages of dementia or Alzheimer’s.

    This guide will provide you with skills and knowledge on how to handle difficult behaviors your aging parent may be experiencing.


    NOTE: Your privacy is important to us. We’ll never share your details nor spam your inbox.

    Instant Access to Free Guide


    Becoming a family caregiver can be a rewarding experience. It also has its challenges.

    There are many questions to answer before making the decision to take care of a loved one.

    This guide will provide answers to questions you may have on this topic.


    NOTE: Your privacy is important to us. We’ll never share your details nor spam your inbox.

    Instant Access to Free Guide


    Is your parent or loved one depressed, or just in a bad mood?

    What does medication and illness have to do with depression?

    How can you help? In this guide, you will be provided with answers to the difficult questions you may have about depression.


    NOTE: Your privacy is important to us. We’ll never share your details nor spam your inbox.

    Instant Access to Free Guide


    Has your aging parent recently lost interest in activities they used to enjoy? Have you noticed a change in their mood and behavior?

    This guide will provide you with resources and tools on how to identify depression, what are the common causes of depression, and how to promote mental health in your aging loved one.


    NOTE: Your privacy is important to us. We’ll never share your details nor spam your inbox.

    Instant Access to Free Guide


    Does your loved one need more support than what they are getting? Would they benefit from some assistance with daily activities?

    In this guide, you’ll find answers to the most common questions asked about assisted living.


    NOTE: Your privacy is important to us. We’ll never share your details nor spam your inbox.

    Instant Access to Free Guide


    Where do you start searching for assisted living or memory care communities?

    What qualities in a community should you look for? How do you know you made the right decision?


    NOTE: Your privacy is important to us. We’ll never share your details nor spam your inbox.

    Instant Access to Free Guide


    Has your dad stopped getting together for lunches or outings with friends or visits with neighbors? Have you stopped enjoying time with your parents because you’re a caregiver?

    Choosing an assisted living community is a big decision. Learn how to find the right one for you and your loved one.


    NOTE: Your privacy is important to us. We’ll never share your details nor spam your inbox.

    Instant Access to Free Guide


    No one ever plans to be sick or disabled, and disasters, man-made or natural, can happen at any time, anywhere.

    Yet older adults are among the most vulnerable during a crisis. That’s why it’s critical that seniors, and those who care for them, prepare for emergencies.


    NOTE: Your privacy is important to us. We’ll never share your details nor spam your inbox.

    Instant Access to Free Guide


    Moving to assisted living is a life-changing event.

    This guide provides tips and ideas on downsizing, what to pack and how to make the transition smooth for your senior parent.


    NOTE: Your privacy is important to us. We’ll never share your details nor spam your inbox.

    Instant Access to Free Guide


    In this eBook, you’ll learn how to talk with family and friends about caregiving challenges, how to deal with a parent who is resistant to help, how to get more caregiving help from your siblings, and how to keep your job while caregiving.


    NOTE: Your privacy is important to us. We’ll never share your details nor spam your inbox.

    Instant Access to Free Guide


    Have you had to cut back your hours at work to care for your mom? Are you worried about administering medications or injections?

    Have you stopped getting together with friends, either because you don’t have the time or you’re too exhausted? Are you becoming the invisible second patient?


    NOTE: Your privacy is important to us. We’ll never share your details nor spam your inbox.

    Instant Access to Free Guide


    In this guide, you’ll learn about the difference between Alzheimer’s and dementia, including the early symptoms of dementia; the seven stages of dementia and the symptoms that typically accompany each one; and the signs it’s time to start exploring your memory care options.


    NOTE: Your privacy is important to us. We’ll never share your details nor spam your inbox.

    Instant Access to Free Guide


    In this guide, you’ll learn about the difference between assisted living and memory care, how health care professionals are trained in dementia care, common features of a memory care community, and questions you should ask when exploring your memory care options.


    NOTE: Your privacy is important to us. We’ll never share your details nor spam your inbox.

    Instant Access to Free Guide


    Navigating adult sibling relationships can be a challenge, but coming together for the sake of your parent is important.

    In this guide, you’ll learn about common sibling conflicts that arise when caring for parents, strategies for getting siblings on board, and where to turn to for help.


    NOTE: Your privacy is important to us. We’ll never share your details nor spam your inbox.

    Instant Access to Free Guide


    Assisted living can be a touchy subject. No matter how you approach it, your parent is likely to have objections to something.

    As you help them transition to a new stage of life, it helps to be prepared with answers to their questions and concerns.


    NOTE: Your privacy is important to us. We’ll never share your details nor spam your inbox.

    Instant Access to Free Guide


    A Guide to the Most Common Family Caregiver Challenges Associated with Caring for an Aging Parent.

    You’ll learn about the true costs of being a family caregiver, common family conflicts that can occur when caring for parents, and some of the unexpected challenges of caregiving.


    NOTE: Your privacy is important to us. We’ll never share your details nor spam your inbox.

    Instant Access to Free Guide


    This checklist will help to make sure you are getting the most out of your visit to The Arbors.

    The list details what important questions to ask during your visit so you are able to make an enlightened choice and find the best assisted living community for your needs.


    NOTE: Your privacy is important to us. We’ll never share your details nor spam your inbox.

    Instant Access to Free Guide


    If you’re unsure what Assisted Living looks like in real life, whether there is a difference with nursing homes or a desire to see how community life unfolds, then this guide is exactly what you need.

    A guide to discover the Care Team and a Typical Day in Assisted Living.


    NOTE: Your privacy is important to us. We’ll never share your details nor spam your inbox.

    Instant Access to Free Cost Comparison guide

    You’re probably wondering how much the different senior living options compare to your current situation.
    If you do, then this guide is exactly what you need.


    NOTE: Your privacy is important to us. We’ll never share your details nor spam your inbox.

    COVID-19 Vaccines are occurring NOW in our communitiesLEARN MORE
    +